Tilly was part of a gene therapy clinical trial at Sheffield Children's Hospital in 2024 to try to help reduce seizures connected to her condition.
「我們以前每個月會外出吃兩次飯，」住在伊朗第二大城市伊斯法罕（Isfahan）的瑪爾珍（Marjan） 說，「現在我們根本不能去了。我們必須把那筆錢省下來付房租。」
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